Link (in a special span so covers all)

DIAGNOSIS

How to diagnose FOP.

Link (in a special span so covers all)

DONATE

Every donation has a big impact.

Link (in a special span so covers all)

FUNDRAISE

Organise events to help raise funds.

We hope to raise awareness on International FOP Awareness Day and throughout April with ‘Fun Feet for FOP’ photos and #FunFeet4FOP. It’s been a busy 10 years for FOP researchers and clinicians following discovery of the ACVR1 gene that causes FOP on April 23rd, 2006. This research breakthrough was pivotal in improving diagnosis for FOP patients and progressing the search for a cure. Within the past decade genetic testing has been made available to improve patient diagnosis, the amount of interest from researchers worldwide has increased, and more recently we’ve even seen the launch of the first clinical trial for FOP. 

So why Fun Feet you may ask? Well, an important early indication of FOP is malformed big toes at birth. This classic sign is often unrecognised due to lack of awareness of FOP and it’s symptoms, leading to misdiagnosis (often of cancer).  


We will be getting together a Fun Feet Countdown on Facebook and Twitter, up to April 23rd and
We Need Your Help!
              

Get involved with 4 simple steps:

Step 1

Tell your friends, family, colleagues...everyone and share the link to this webpage.

Step 2

Find your style and take a photo! Ideas include: Wearing snazzy socks, wacky wellies, bizarre boots. Get creative with an eye-catching pedicure, or take a snap of your pet in slippers! You could even hold a Fun Feet Day at the office, or a Flip Flop Day, asking participants to donate, with proceeds going to FOP Friends.

Step 3

Upload your photos on social media along with the hashtag #FunFeet4FOP. Be sure to tag FOP Friends on Facebook and Twitter and add the link to this website page.

Step 4

Share your social media posts with friends and followers and include details about how to donate to FOP Friends:

Text CFOP00 £20 (or any other amount) to 70070 or Donate Online via Virgin Money Giving here. You could even set up your own fundraising page on Virgin Money Giving. 

If you have any questions or would like some more ideas, please contact us. We will be running a competition for the best post - so be creative! We can't wait to see what you come up with.                                                                                                                                 

We thank you for your support in raising awareness for one of the rarest conditions known to medicine.

      

 
 


                               
 


 

Mari Wyn Jones
Thursday, 21 April, 2016 - 12:21
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