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FOP Friends would like to invite you to the third UK Conference and Family Gathering 2018.  This will be held again at the Radisson Blu Airport Hotel, Manchester. Booking closes soon. 

We are delighted to announce that Professor Fred Kaplan, Professor Robert Pignolo, along with Dr Richard Keen from RNOH will be attending, along with other internationally respected FOP experts.

This year’s main theme will be living with FOP, with a clear focus on patients and families.

There will be presentations from our world-renowned FOP experts along with representatives from the pharmaceutical companies who are at the forefront of FOP research.  Complications FOPers face with regard to their dental health will also be addressed by Dr Gehan Abou-Ameira from GOSH.  Attendees will also be able to ask questions during a Q&A panel session.

In the afternoon, there will be workshop sessions to provide an opportunity for families and FOPers to break off into groups and discuss topics of relevance to them.  The workshops will be guided by facilitators to enable attendees to get the most out of the sessions.

Clinical appointments will be available for FOPers, and led by Professor Kaplan, Professor Pignolo and Dr Keen.  Taking place over three days, appointments will give patients the opportunity to consult with the physicians privately. 

Childcare, and a quiet space for young adults, is provided to enable parents to participate fully in the day. 

There will be a family dinner in the evening with light entertainment provided.  This is an informal and fun affair where parents can relax together and simply enjoy each other’s company. 

We have been lucky enough to secure a grant from the Big Lottery Fund (National Lottery).  This means that patients, their main carer, parents and siblings can benefit from a generous discount of 50%, freezing the cost to 2016 prices. For more information, click here 


Book online now: CLICK HERE

Hannah Dempsey
Wednesday, 25 April, 2018 - 11:17
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