Funding a cure

Finding a cure can only be achieved through providing financial support to those institutions carrying out research.  FOP Friends presently supports the IFOPA and Oxford University in providing funding to enable research to continue.


The International FOP Association is a non-profit organization supporting medical research, education and communication for those afflicted by the rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP). Our mission is to fund research to find a cure for FOP while supporting individuals and their families through education, public awareness and advocacy.

FOP France

Working to raise awareness and help fund the search for a cure.


FOP Australia 

Established in 2015, provides support and information to FOP patients and families in Australia and New Zealand. 


FOP Action

Working to raise awareness and help find a cure.


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FOP Friends is a Registered Charity in England and Wales #1147704

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