FOP is so rare that we need all the help we can get to raise the money needed to continue funding the research for a cure.  Please get involved in fundraising for FOP Friends.

You can start fund raising immediately using our FOP Friends Virgin Money Giving page; just click on the link.

If you would like our help with your fundraising or organising an event, please contact us.  FOP Friends is also organising events you can become involved in.  

FOP Friends Events

Great North Run


FOP Friends is able to reserve entries for supporters for the Great North Run each year. Please message us if you'd like to sign up to run on our FOP Friends team. Even if you do not have a direct link to our FOP Friends charity, we would still love you to run for us and raise awareness/funds for FOP.

Hold Your Own

If you would like to arrange your own event please contact us and where we will give you all the support you need to make sure it is a success.

Support Our Events

For a full list of upcoming events, please visit our events page.

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FOP Friends is a Registered Charity in England and Wales #1147704

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