FOP is so rare that we need all the help we can get to raise the money needed to continue funding the research for a cure.  Please get involved in fundraising for FOP Friends.  Perhaps you have a personal challenge you would like to undertake (a marathon, a climb, a swim).  If so, why not consider doing it on behalf of FOP Friends?

Set a personal challenge or organise an event and you can start fund raising immediately using our FOP Friends Virgin Money Giving page; just click on the link.

If, however, a physical challenge is not for you, perhaps you would like to hold your own event.  Many of our supporters have held coffee mornings, bingo nights, line dancing events, and even arranged sponsored walks.  Holding your own event is great fun and a fantastic way to help. 

If you would like our help with your fundraising or organising an event, please contact us.  FOP Friends is also organising events you can become involved in.  

FOP Friends Events

Skyline Overseas

FOP Friends has teamed up with Skyline Overseas allowing our supporters to take park in overseas personal challenges.  Anyone is welcome to sign up to a event / personal challege and raise funds towards FOP research.  Events include: London to Paris Cycle, 3 Cities Cycle, Kilimanjaro Trek, Trek Peru, Trek IcelandSahara Trek, and China Trek.  Be sure to choose "FOP Friends" as your charity and we will be notified of your registration after which we will support you with your fund raising efforts.

Great North Run


Please message us if you'd like to sign up to complete the Great North Run and run on our FOP Friends team. Even if you do not have a direct link to our FOP Friends charity, we would still love you to run for us and raise awareness/funds for FOP.

Hold Your Own

If you would like to arrange your own event please contact us and where possible we will assist you in making it a success.

Support Our Events

For a full list of upcoming events, please visit out events page.

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FOP Friends is a Registered Charity in England and Wales #1147704

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