UPenn, USA

The FOP Research Laboratory, created in 1992, is located at one of the most prestigious medical and research institutions in the country -- the University of Pennsylvania School of Medicine.

Led by Frederick Kaplan, M.D., and Eileen Shore, Ph.D., the FOP Research Laboratory’s dedicated research team includes three principal investigators with many post-doctoral fellows, scientists, students and staff. This core team collaborates with physicians and scientists worldwide to develop treatments and -- someday -- a cure for FOP.

The FOP Research Lab’s seminal work has been highlighted in many prestigious medical publications, including the New England Journal of Medicine, Nature Genetics, The Journal of Bone and Joint Surgery, Clinical Orthopaedics, and The Journal of Bone and Mineral Research.

Much of FOP research takes place at the University of Pennsylvania School of Medicine, where a research laboratory devoted to FOP exists, the search for answers is part of a worldwide effort by many individuals and research teams over the past fifteen years. Scientific members of the International Research Consortium in Australia, Brazil, France, Germany, Korea, the United Kingdom, and throughout the United States have identified multigenerational families who helped us discover the FOP gene, as well as making other important contributions to FOP research.

People with FOP have generously provided blood and tissue samples and helped to raise the funds that are needed to sustain the research effort. In fact, most of FOP research is funded by FOP families, their friends, and their communities. FOP research is a team effort that could not take place without the efforts of all involved.

University of Pennsylvania Research Updates

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