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METHOD:PUBLISH
X-WR-CALNAME:FOP Friends
X-ORIGINAL-URL:https://www.fopfriends.com
X-WR-CALDESC:Events for FOP Friends
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TZID:Europe/London
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DTSTART;VALUE=DATE:20210228
DTEND;VALUE=DATE:20210301
DTSTAMP:20260502T011650
CREATED:20191010T121638Z
LAST-MODIFIED:20200303T124621Z
UID:18343-1614470400-1614556799@www.fopfriends.com
SUMMARY:Rare Disease Day
DESCRIPTION:FOP affects just 1 in 1.4 million people.  This means it’s an ultra-rare disease.  It’s one of the cruellest and most disabling conditions known to medicine.  There is no known treatment or cure although current clinical trials are proving we do have hope in the future. \nShare our social media posts on Rare Disease Day and help us to raise awareness and cure FOP.
URL:https://www.fopfriends.com/event/rare-disease-day/
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