Chris has been involved with the FOP community since his son Oliver’s diagnosis in 2009. He was one of the founding trustees of FOP Friends, after learning that there was no UK charity to support families with FOP. Chris served as chairman of FOP Action (which has now been integrated into FOP Friends) and has also been a Board Member of the IFOPA since 2011. He is currently the Chairman of the IFOPA International Presidents’ Council, bringing together FOP organisations and leaders from across the world. He carries out this work alongside his day-job as director of UK based technology company, Skillsarena.