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Our Together newsletter is a quarterly round up of research news; updates about the charity’s work; insights into the lives of those affected by FOP; and a celebration of of our supporters who enable us to keep working towards finding the treatment and cure for FOP.

We are thankful to The Zochonis Charitable Trust for their grant which has made this newsletter possible.

If you have any articles or stories you would like to contribute to the newsletter, we’d love to hear from you.  Send us an email or a message via our Contact Us page.

Past Newsletters