There is a wealth of information and support out there when you get a diagnosis of FOP, but it can be overwhelming to read too much too soon.
Take one day at a time, and only search out answers when you feel ready to do so. If it starts to get too much, then pause and come back to it at a later date. Remember to reach out and ask for help if you feel like it is affecting your mental wellbeing. There is support out there, and FOP Friends or your local patient organisation can signpost you to talking and listening services which can help.
Remember, you are not alone on this journey, there is a community out there waiting to be your friend and to answer any questions or concerns you may have. You just have to ask. We’re here for you.
Privacy & Cookies Policy
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.