FOP Friends is a kitchen-table charity. We are proud of our roots and everything we have achieved in a relatively short period of time and with limited resources. We have become the strong, dynamic patient organisation we are today as a result of the hard work, passion, drive and commitment of the trustees.
However, we also acknowledge that we wouldn’t be where we are today without advice and guidance from other organisations. We have had to become experts in so many things in such a short space of time, yet we have always recognised when we have needed to reach out for support.
This is why rare disease groups team up! We may be small, but together we are mighty. We know that in order to achieve our goals we need to work together, and combine our strengths. By joining forces with other organisations, it has helped us to amplify our voices and gain more attention.
We are incredibly thankful for the advice and opportunities we have gained by working with the following groups. They have helped us to become the team we are today, offering support and giving hope to those living with FOP. Through effective collaboration, we have become a strong, guiding light for everyone affected by FOP.
Click on a logo below to visit the organisation’s website.
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