Home / You Can Help / Fundraising

As a charity, we receive no government or NHS funding to support our work.

Every year, we aim to raise £120,000 for the University of Oxford’s FOP Research team.  Without our funding, the team would not be able to commit to its research into FOP.

We also endeavour to support other smaller projects, such as the ‘ACT (Accelerating Cures and Treatments) for FOP’ grant program, which helps to supports investigators who are interested in researching and accelerating the development of safe and transformative therapies for FOP.

Please help us to reach our target, so we can help those affected by this painful and cruel disease.

Fundraising Ideas

Whether you’re challenging yourself to run your first marathon or setting goals for your next cake sale, remember that the FOP Friends team is here to help you where possible – so please do get in touch.


FOP Friends is able to reserve entries for supporters for the Great North Run each year.  Please message us if you’d like to sign up to run on our FOP Friends team.  Even if you do not have a direct link to our FOP Friends charity, we would still love you to run for us and raise awareness/funds for FOP.

FOP Friends runners with medals

If you would like to arrange your own event please contact us and we will give you all the support you need to make sure it is a success.

We can help out with sponsor forms, setting up Virgin Money Giving pages, donation pots, we will also provide t-shirts for people taking part in sporting events, personalised with your own FOP Friends logo.

One of the greatest challenges of fundraising is coming up with new ideas, so we have put together some of our favourite fundraising activities, many of which have already been tried and tested by our fantastic supporters to hopefully inspire you with your next event!

For inspiration, check out our A-Z fundraising ideas here.

For a full list of upcoming events, please visit our events page.

#FunFeet4FOP is a social media campaign that takes place every year on 23rd April, coinciding with the discovery date of the gene responsible for FOP, ACVR1. People post photos of their fun feet to raise awareness of FOP.

Visit our #FunFeet4FOP page to find out how to get involved.

Children's feet painted with symbols

Sign up your school, workplace or community group to Jeans for Genes Day We work in partnership with GDUK and we receive half of the funds raised at your school, with the other half of the monies going to support Genetic Disorder UK’s work to support all people who live with a rare genetic condition.


We have been incredibly lucky to have been the chosen charity for a number of large companies.  Be part of our history and choose us as your Charity of the Year.  By supporting our work, you have the chance to help 100% of our community.  For every pound raised, 95p goes directly to FOP research.

If you cannot commit to the year, hold a one-off event for us. Even if we only benefit from one of the company’s Dress Down Fridays, it all adds up to make a big difference. You can offset any donation/money raised against your profits for Corporation Tax.  Giving to a charity, as opposed to paying the tax man is a great win-win situation.

For more information, contact

or download our Corporate Fundraising Pack.


Check out some of our awesome fundraising events from the past few years.  A huge thanks to everyone who has run, jumped, swam, baked, dived, cycled, and more, for us.  Words cannot express how thankful everyone affected by FOP, is for your efforts.