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Latest Past Events

Mar 12 2021

12th March 2021 - 15th March 2021

FOP Family Weekend Break

Center Parcs, Sherwood Forest Newark

Our third Family Activity Weekend Break will take place and the destination will again be Center Parcs, Sherwood Forest, Nottinghamshire; a prime location for travel across a wide geographic area....

Feb 28 2021

28th February 2021

Rare Disease Day

FOP affects just 1 in 1.4 million people. This means it’s an ultra-rare disease. It’s one of the cruellest and most disabling conditions known to medicine. There is no known...

Sep 14 2020

14th September 2020 @ 12:01 am - 20th September 2020 @ 11:59 pm

Jeans for Genes Day 2020

Sign up your school or workplace for Jeans for Genes Day 2020. Help raise money and awareness for everyone living with a rare genetic condition.

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FOP Friends

Registered Charity in England and Wales #1147704

Email: info@fopfriends.com

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