FOP Research Petition
Fibrodysplasia Ossificans Progressiva, or FOP, is one of the rarest and cruellest genetic disorders known to medicine.
It turns otherwise healthy children into statues: a bright mind locked inside a frozen body.
Just at the time a child should be developing their independence, FOP can cruelly snatch it away without warning.
There is no treatment or cure BUT we have hope on the horizon. We have researchers tirelessly working to change the futures for all our children.
Research into FOP receives no government funding. Help us to help the researchers by signing the petition to get the Government to provide funding to support the research into a treatment for FOP, and to make a life-changing difference to those living with FOP.
Thank you x