Today was an exciting day for us as we launched our shiney new website! This was made possible by the amazing team at AndDigital in Manchester, led by Jamie and Michael, who donated their services for free. The new website aims to be a place for friends, family, and supporters alike. There is a wealth...
Author: Helen Bedford-Gay (Helen Bedford-Gay)
Welcome to Karolina
Supporting a child with FOP: a practical guide to their learning journey
We are thrilled to announce our first publication has gone out to our community. The book was written by Helen with the support of many of our FOP families around the world, as well the medical professionals. It is a much needed and long awaited resource. It was made possible thanks to a generous grant...